For Families Facing Diagnosis

If you just received a diagnosis, we want you to know something first: you do not have to figure all of this out today. Take a breath. You are not alone. And we are glad you found us.

What to expect in the days ahead

The first days can feel overwhelming. Medical terms you have never heard, decisions that feel too big, emotions that do not have words yet. That is normal.

• Your medical team is your most important resource. Do not hesitate to ask them to slow down, repeat something, or explain it in simpler terms. You are their partner in this.

• Treatment plans vary widely. Some children begin treatment immediately. Others go through more testing first. Your oncologist will walk you through your child’s specific timeline.

• It is okay to ask for time. You may be asked to make decisions quickly. It is also okay to ask for a second opinion. A good medical team will support you in both.

Questions to ask your medical team

• What is the exact diagnosis and what does it mean?

• What are our treatment options, and what do you recommend and why?

• What are the short-term and long-term side effects of treatment?

• How long will treatment last, and will my child attend school during it?

• Is there a social worker or patient navigator we can work with?

How to talk to your child

• Use honest, age-appropriate language. Children sense when something is hidden, and uncertainty often causes more fear than the truth.

• Let them ask questions. Some want to know everything. Others just want to know you will be there. Follow their lead.

• Reassure them. Children often believe they are responsible for bad things. Say it clearly and often: this is not their fault.

• Keep routines where you can. Predictability is comforting for children in crisis.

How to take care of yourself

• Accept help when it is offered. Let people bring meals, drive siblings, sit with you. Letting others in is not weakness.

• Find one person you can be completely honest with. Not the version holding it together. The version that is terrified and exhausted and doing it anyway.

• Reach out to the hospital social work team. Most pediatric oncology departments have social workers available to families at no cost.

• Give yourself permission to not be okay. Grief and fear and love can all exist at the same time. All of it is valid.

We are here if you need us. Reach out any time, or visit our Partner Resources page to find organizations ready to help right now.